Anyone can refer a child to Hope House Children’s Hospices whether they are a doctor, other health care professional or family member. All we ask is that the child’s parents or person with parental responsibility agree to the referral and that they are aware of our criteria.
Once a referral has been made we need to obtain written consent from the parent/young person or person with parental responsibility. This enables us to request medical information from the child’s Consultant and General Practitioner for use by the Hope House and Tŷ Gobaith Referrals Panels.
The panel is made up of the hospice medical officer, senior nurses and social work staff who decide whether or not a referral is accepted. They need to see that, in the opinion of medical professionals involved, the child or young person is not expected to live beyond early adulthood (25 years).
We care for babies, children, young people and young adults with a range of conditions:
Group 1 – Life-threatening conditions for which curative treatment may be feasible but can fail, where access to palliative care services may be necessary when treatment fails. Children in long-term remission or following successful curative treatment are not included. (Examples: cancer, irreversible organ failures of heart, kidney, liver)
Group 2 – Conditions where premature death is inevitable, where there may be long periods of intensive treatment aimed at prolonging life and allowing participation in normal activities. (Examples: cystic fibrosis)
Group 3 – Progressive conditions without curative treatment options, where treatment is exclusively palliative and may commonly extend over many years. (Examples: Batten Disease, Mucopolysaccharidoses, Muscular Dystrophy)
Group 4 – Irreversible but non-progressive conditions causing severe disability leading to susceptibility to health complications and likelihood of premature death. (Examples: severe cerebral palsy, multiple disabilities, such as following brain or spinal cord injury)