The Children

Over  320 families who currently have, or have recently lost a life-limited  child are supported by Hope House and Ty Gobaith. 

Children and young people who access our services have a broad range of illnesses which fit into the ACT/RCPCH categories as follows:

• Group 1: Life threatening conditions but for which curative treatment may be feasible but can fail, where access to palliative care services may be necessary when treatment fails. Children in long term remission or following successful curative treatment are not included. (Examples: cancer, irreversible organ failures of heart, kidney, liver)
• Group 2: Conditions where premature death is inevitable, where there may be long periods of intensive treatment aimed at prolonging life and allowing participation in normal activities. (Example: cystic fibrosis)
• Group 3: Progressive conditions without curative treatment options, where treatment is exclusively palliative and may commonly extend over many years. (Example: Batten disease, Mucopolysaccharidoses, Muscular Dystrophy)
• Group 4: Irreversible but non progressive conditions causing severe disability leading to susceptibility to health complications and likelihood of premature death. (Examples: severe cerebral palsy, multiple disabilities such as following brain or spinal cord injury)